On this website we have tried to bring together information for sufferers of Mastocytosis and Mast Cell Activation Syndrome.
Both Mastocytosis and Mast Cell Activation Syndrome are largely unknown to most GP's and many specialists. We hope that by using this website you will not only be able to gain information for yourself, but will be able to use it as a source of information for your doctors.
The UK Mastocytosis Support Group offer their sincere thanks to
for her drive, guidance and patience with us all, and to the many learned and willing people who have contributed articles to this website.
Please be aware that the information on this site is mainly intended for those newly diagnosed, and for those who want a basic knowledge of the condition. We have provided links within the site to more authoritative sites and articles, if needed.
Our UK Mastocytosis Support Group attained charitable status on 30th September 2013
Registered Charity number: 1154007
Saturday 3rd October 2015 at our AGM
We shall bid a very sad farewell to our founder Irene Wilson who is retiring.
Irene founded the group back in 2004 after being Diagnosed herself with Systemic Mastocytosis.
Her tireless and selfless efforts have seen the group support rise to 200+ members, achieved charity status and global recognition by Mast cell Doctors.
Her Legacy will continue through the charity and support groups dedication.
Irene Wilson we THANK YOU!
And wish you a very Happy Retirement